Comments on: Vitiligo: More Than Skin Deep

By: Tom

Tom — Sat, 19 Jul 2008 07:57:01 +0000

One more thing, I have become very knowledgeable on vitiligo. I keep up on the latest information, so if anyone has any questions I can hopefully answer them or direct you to a good resource.

By: Tom

Tom — Sat, 19 Jul 2008 07:44:55 +0000

As a person who has vitiligo on my face and hands I wish there was a cure. I didn’t develop vitiligo until I was 26 yo after a bad sunburn. I didn’t personally notice it until a middle aged woman walked up to me and said “I would die if I had those white spots on my face”. That started me to become manic about being staying out of the sun. I wear SPF 85 sun protection to deflect most of the sun rays. I find people are cruel, superficial, and very fake.

I was doing very well in a job where I managed a small group of IT people, and had a good re-pore w/the client (I had been staying out of the sun almost totally for a few years). I was promoted to site manager after the client award my company a 4.2 million dollar contract based on both my and my teams skills. Well, everything was going well until I forgot himself one weekend when I took 20 team members on a weekend canoe trip. It had been so long since I had been out in the sun that I didn’t realize how much my vitiligo had spread. Well, I tan very easily thats why I stay out of the sun (example: I would tan through the car window in the winter). Since I met with important political appointee in the front offices on a regular basis. I was removed from those duties. (an side: I found that people do not like to be put in a position of being uncomfortable so they avoid it or have it removed if they can) After a few weeks my company found a replacement for me and I became a tech again. After a few months I was removed from the site.

Conclusion: I had realized what I had done by going on that weekend trip w/ my team; I exposed my condition which made everyone around me feel uncomfortable.

Its a sad commentary when society is today, values looks more important than the measure of the person.

Today, I have a job and I don’t really care about being tan or not. I am hoping one day they will find a cure (not in my lifetime). Thank god, the woman I married sees me and not my vitiligo. The most important concerns are God and my wife.

By: Monty

Monty — Mon, 09 Jun 2008 04:07:38 +0000

Sharicka, just tell your husband what’s happening to his skin is a beautiful thing. Support him and keep telling him that if it does spread to other places. Because it is a beautiful thing and its only happening for a reason. Its human nature, and its beautiful.

By: Silly

Silly — Sat, 24 May 2008 15:24:08 +0000

Dear Brian

I would like to thank you for this great article. It’s about time people make their own unbiased opinion on Michael Jacksons skin disease.

These days people are quick to believe whatever the mass media likes to say. No one questions the sources from the tabloids.

Not only does Michael wear that much clothes to hide his skin and because he’s dissatisfied with it, but also because direct sun light on such a pale skin can easily cause cancer.

Michael Jackson is the most loving and generous man in the music industry. Not a pedophile nor a freak. Just a loving man that isn’t fake as most of us are! He is just down to earth!

By: Awais

Awais — Tue, 29 Apr 2008 10:54:49 +0000

Although the complete annihilation of the vitiligo from your body is a difficult matter, whereas original color of skin can be brought back.
Actually vitiligo is irregularity of internal resistive system of human beings, and currently there are no known permanent ways to treat this process.
Vitiligo results from a derangement of your normal defense mechanisms against infection. The body starts producing antibodies against pigment producing cells of its own skin
If you use tropical treatment it is fast and have not side effect.
Never disheart there are always cure of every disease.

By: Brian

Brian — Tue, 25 Mar 2008 23:55:49 +0000

@ Sharicka: I wish I could help you in some way, but I don’t know how. Just remind your husband that it doesn’t always spread or worsen, read as much about it as you can, and keep loving him.

By: sharicka

sharicka — Tue, 25 Mar 2008 22:42:57 +0000

my husband has this on his hand. and no where else. and he is beating his self up thinking that it will some day be on his face. he is 30 years old, and i need help to bring up his spirit. he was going to get a tatoo over it.and he didnt what can i do . plese help me to help him. I love him and when it hurt him it is hurting me too.

By: Constance

Constance — Thu, 31 Jan 2008 00:38:31 +0000

Brian (I think it’s Brian) writes: When one considers the emotional turmoil that such a condition might have on a person that lives in the spotlight, the gloves, surgical masks, and long wigs begin to make a bit more sense.

Dear Ones,

I believe if one turned this comment upside-down it would be closer to the truth: that when one considers the emotional turmoil of a person living in the spotlight (alone with early-life trauma,abuse, etc), the vitiligo makes more sense.

Once the vit sets in, it’s the ouroborous (snake biting its own tail) — the emotions equal the vit equal the emotions ad infinitum. The cycle can be broken.

and btw, I love Michael J.

By: Kiki

Kiki — Fri, 28 Dec 2007 05:27:14 +0000

There is another reason for MJ to cover himself from head to toe, wearing veils and such: the loss of pigmentation from vitiligo makes the skin extremely sensitive to the sun; a person can burn very quickly. I imagine he needs to protect himself from more than just stares.

By: Brian

Brian — Wed, 19 Dec 2007 15:23:22 +0000

@ fightingwindmills: I have to make an effort not to stare, too. It’s kind of intriguing to me, but I’m sure the afflicted person doesn’t appreciate my interest.

@ Karen: Yes, he is!

@ the floacist: You’re more than welcome. I’m so sick and tired of everyone heaping their hatred on this man. He’s obviously not well, but I honestly don’t believe he’s hurting anyone. By all counts, his children are well-balanced, well-behaved, and well taken care of. That’s all that matters.

@ Moonbeam McQueen: I wish he had, too. There was a period after a couple of nose jobs where I think he was absolutely gorgeous, if in an androgynous way.